Thursday, April 23, 2009
Proof That It's Not In Our Heads
Another study came out that validates the fact that Fibromyalgia is real. In patients with fibromyalgia blood flow in the brain is abnormal. The only problem is, we have no idea why or how it became this way. So there is some proof for those non-believers that fibromyalgia is real.
Sunday, April 19, 2009
Possible New Treatment For Fibromyalgia
The drug is called Naltrexone (nal_Trex_Own). It is being tested at Stanford by Jared Younger and Sean Mackey. Six of the ten women tested (keep in mind it is just preliminary testing) responded positively.
So you may be asking what is Naltrexone? Naltrexone is used to treat alcoholism and other addictions. It has been around for thirty years.
Sean Mackey, and Jared Younger are currently planning another step in the study, which more people with Fibromyalgia are eligible for.
So you may be asking what is Naltrexone? Naltrexone is used to treat alcoholism and other addictions. It has been around for thirty years.
Sean Mackey, and Jared Younger are currently planning another step in the study, which more people with Fibromyalgia are eligible for.
Wednesday, April 8, 2009
Neurally Mediated Hypotension, Fibromyalgia and Chronic Fatigue Syndrome
Neurally mediated hypotension is a miscommunication between the brain and the heart. When a person does something where their blood pressure should go up, the brain tells the heart to lower the blood pressure. This is part of a slightly larger group of blood pressure problems which is called Chronic Orthostatic Intolerance. There is a lot of confusion about how these two are organized. If you have NMH you have Chronic Orthostatic Intolerance.
You may be asking as to what this has to do with Fibromyaglia and CFIDs. The answer is it is commonly associated with them. There is no known explanation as to why it is, but it is.
Some symptoms of Neurally Mediated Hypotension are: Post-excertional malaise, dizzieness, fainting, weakness, blurred vision, naseua, and fatigue (it worsens CFIDS and Fibro), light headedness, and muscle aches. These symptoms most oftenly occur when you are: excersizing, being warm, having upright posture, after eating, and during stressful situations.
Chronic Orthostatic Intolerance (including NMH) is diagnosed by a tilt table test. This is where you are forced to stand still for a certain amount of time. If you faint then you have NMH/Chronic Orthostatic Intolerance.
The treatment is to increase salt intake and drugs that regulate your blood pressure.
You may be asking as to what this has to do with Fibromyaglia and CFIDs. The answer is it is commonly associated with them. There is no known explanation as to why it is, but it is.
Some symptoms of Neurally Mediated Hypotension are: Post-excertional malaise, dizzieness, fainting, weakness, blurred vision, naseua, and fatigue (it worsens CFIDS and Fibro), light headedness, and muscle aches. These symptoms most oftenly occur when you are: excersizing, being warm, having upright posture, after eating, and during stressful situations.
Chronic Orthostatic Intolerance (including NMH) is diagnosed by a tilt table test. This is where you are forced to stand still for a certain amount of time. If you faint then you have NMH/Chronic Orthostatic Intolerance.
The treatment is to increase salt intake and drugs that regulate your blood pressure.
Tuesday, April 7, 2009
What About Physical Education and Fibromyaglia?
I am managing to do physical education with my juvenile fibromyaglia. Technically it's modified PE, and that sucks. IF you don't have fibromyalgia and or chronic fatigue let me try to tell you what it feels like to run (I also have costochronditis which causes some of the following symptoms). I feel like my head is going to explode. My blood pressure becomes so low fromt he neurally mediated hypotension, that I can barely make out what is in front of me. The costochronditis causes my arms and head feel like they are bulging forward, while my is being pushed down. My joints feel like they are grinding. The sore throat from my CFS gets worse cause I'm inhaling pollen.
Those are just the symptoms. What is the worst thing you ask? The fact that you see kid's either A. Running ahead of you with no problem or B. kid's near you are complaining and they have no idea what pain is. I never let myself get weak in public, if you do you are a target. Anyway just watching a pain free kid makes me think about when I didn't have the pain. I took everything for granted. I judged my mother for being affected by it, when I clearly had no clue. I hope this has given you some insight if you don't have any of these disorders as to what excersize is actually like.
Those are just the symptoms. What is the worst thing you ask? The fact that you see kid's either A. Running ahead of you with no problem or B. kid's near you are complaining and they have no idea what pain is. I never let myself get weak in public, if you do you are a target. Anyway just watching a pain free kid makes me think about when I didn't have the pain. I took everything for granted. I judged my mother for being affected by it, when I clearly had no clue. I hope this has given you some insight if you don't have any of these disorders as to what excersize is actually like.
Saturday, April 4, 2009
A List Of Foods For People With Fibromyalgia To Avoid
1. High Fat dairy (for example yogurt)
2. White Sugar and Flour (pasta, white bread and rice)
3. Fried Foods (That should be for people without fibromyalgia too.)
4. Preservatives, junk food, and salty foods (I'm guilty of this one)
5. Red Meat
6. Carbonated Beverages (including soda.)
7. Alcohol
8. Nutrasweet, saccharine, and aspartame (these stimulate pain receptors for some reason)
9. Nightshade plants (potatoes, tomatoes, peppers, and eggplant.)
2. White Sugar and Flour (pasta, white bread and rice)
3. Fried Foods (That should be for people without fibromyalgia too.)
4. Preservatives, junk food, and salty foods (I'm guilty of this one)
5. Red Meat
6. Carbonated Beverages (including soda.)
7. Alcohol
8. Nutrasweet, saccharine, and aspartame (these stimulate pain receptors for some reason)
9. Nightshade plants (potatoes, tomatoes, peppers, and eggplant.)
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